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Old 10-11-2006, 12:23 PM
Margaret Diann Margaret Diann is offline
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Join Date: Jan 2004
Location: Valdez, ALASKA 99686
Posts: 505
Default protein leaking nephropathy

I asked several doctors this question ...

"Do you see this in Vets ... and other autoimmune metabolic issues such as lipid issues?"


Quote:
I'm convinced that metabolic features (changes in cholesterol and lipid profile, changes in glucose uptake and cell use, mitochondrial diseases and so on) are among main underestimated issue of 2-BE," says a French journalist

What does EGBE exposure do to an animal ... such as these 2 cats:

http://groups.msn.com/clean/spotshot.msnw

I suspect this experiment in exposure can be easily replicated

I noticed little children at a day care had snotty noses
(loosening of the sinuses)
and those who stayed longer had diarrhea ...

I am working with this day care provider to find better cleaning products.
She said bleach didn't clean well

She used Simple Green & another product sometimes
RE: Simple Green, I said, "They LIE"

Margaret
__________________
Look into BUTYL for CFIDS, CFS, FM & 'Military Syndromes' *

An e-mail request to the CDC

on Flu Symptoms

Traces of blood in urine? *

Diarrhea then Constipation?

Seizures Fainting Dizziness *


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  #2  
Old 10-11-2006, 02:27 PM
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Boats Boats is offline
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Location: Sauk Village, IL
Posts: 21,828
Default

Maggie - my wife has had two small strokes, she's been diagnosed as having fibre mi-alga and neurapathy. (Spelling is wrong I'm sure). All of this happen since January when she stood up and broke her foot in three places. Ever since she's been suffering with nerve damage and pain when when walks.

I've had her to a dozen doctors (some pretty good). She has a partially crushed C6 or 7? vertebrae She is seeing the neuro-surgeon on the 27th to see if they can take the pressure off of her neck. They suspect that its pinching the nerves going to the lower extremedies which is giving her all the pain in her arms and legs and mostly her feet.

Poor kids been through the ringer and I'm doing my best to help her through this ordeal. I could tell you some stories but you are too well read on too many subjects and I'm sure you know what she is going through.

Sorry for venting this - its been long hard year for her and all of us trying to help her get to some resolve. She has a very poor attitude for doctors as they can't seem to find out exactly what to do for her.
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Boats

O Almighty Lord God, who neither slumberest nor sleepest; Protect and assist, we beseech thee, all those who at home or abroad, by land, by sea, or in the air, are serving this country, that they, being armed with thy defence, may be preserved evermore in all perils; and being filled with wisdom and girded with strength, may do their duty to thy honour and glory; through Jesus Christ our Lord. Amen.

"IN GOD WE TRUST"
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Old 10-11-2006, 05:16 PM
Margaret Diann Margaret Diann is offline
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Location: Valdez, ALASKA 99686
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Default When did her fatigue start?

the FM may be the cause of it all

I think degenerative discs should also be on the list of disability approval...such as for this man

Military Need Expanded Presumptive Lists
For approving Medical Disability during Service to the USA

to include any autoimmune issue that springs out of CFIDS ... even degenerative disks ... take a look at the links ... those with the worst treatment are the 'gulf war syndrome' vets and after that will be today's

Quote:
Is it really worth fighting the VA for Gulf War Syndrome? It seems to me they just want to identify you to ridicule you and deny you benifits. I served in the Navy from July 76 until Jul 96 when I finally retired with my full 20 as a Chief Fire Controlman FCC (SW). I went out after spending nine of my last 12 months of active duty on limited duty. In July of 1995 I had a doctor who had been after me to go on limited duty for about six months and after getting a complete a$$hole for an XO I took him up on his offer. At the time I was having problems with weakness in my left arm, (MRI's showed a herniated disc in my neck and a couple, out of many, nerve tests showed some pinching of a nerve) at the same time I was seeing a rheumatoligist for joint/muscle aches, headaches and what they called DIMS ( Deminished ability to Induce and Maintain Sleep). Mind you I had been hiding the joint and muscle pain for years in fear of getting a medical retirement. During the course of the exams I was having the doctor was having a hard time locating reflexes in my left arm so he sent me to Bethesda to see a neuro surgeon so off my wife and I went. During the exam in Bethesda the doctor told me he was unable to get any reflexs anywhere in my body to react at all. He belived I had Multiple Sclerosis (MS) and should go back to my doctor in Mayport. I went back to FL and my Doctor did a spinal tap ( man talk about the mother of all head aches) and ruled out MS, in the mean time I was diagnosed with fibromyalgia. I was sent to Charleston on 9 month TAD orders to be close to my family, went back to Floridqa for 3 months, finished out my 20 and retired, no retirement cermony or party, no end of service award, no thank you for your service, no transition assistance program, no benifits briefing , nothing, just one day I wore a uniform and the next day I didn't.

After I retired I approached civilian life just like I did military I worked hard to be sucessful. But things were getting harder and harder. When I first got out I applied for benfits for my neck and I had bad knees as well as sinus surgery, knee surgery and a rebuilt ankle. I continued to work hard ( as a Realtor). Being a sucessful Realtor takes long hours, working 60+ hour weeks and never having a day off. You have to be there when your clients are ready, day night or afternoon, weekday or weekend. So please all of you appreciate what your Realtor does for you. Any way after a while the body aches became to much and I was not able to put in the hours I once was able to. The fatigue was getting to me and there began to be days that I just could not fuction. I asked fro an increase in my compensation fro fybromyalgia (which at the time was only 10%) and I began to go to Voc Rehab training because I knew I would not be able to continue the long hours Real Estate required to earn a living. In In Jan 2003 I became ill and was having severe pain when breathing, my doctors took some x-rays and decided I had pneumonia and treated me with 10 days of antibiotics, a follow up appointment showed no improvement, they then started antother course of stronger antibiotics. Another follow up with no improvements. The x-ray showed a large amount of fluid on my left lung. My doctor took me aside and explained to me what was going on. He had consulted with another doctor and I was going to have to go into the hospital for some test to rule out TB and cancer. I went in, they drained 900ml off my left lung. Spent 10 daqys in hospital. Tets were neg for TB and cancer. Was out of hospital for 10 days when it all started to happen again. This time fluid was too thick to drain and I ended up with having my chest spread open and having lung surgery to remove the mess. I spent 4 days in ICU and 10 more days in hospital. I now have only about 50% lung capacity. Subsequent follow up with the consulting rheumatologist shows it was an autoimmune attack due to unspecified rheumatoid disease. I had a similar episode in 1985 but the doctor ( an internist) was never able to figure out what happened. I applied for benifits based on that and ofcourse the VA denied my claim. They say there is no service connection and it is probably related to the fybromyalgia for which I already receive compensation. I asked my doctor to review my active duty service record which he did and he pointed out several things that were over looked and why my current illness was undiagnosed while on active duty, that there were signs of it going all the way back to 1979 and that it was completely seperate from my fybromyalgia. I filled an appeal and have another C&P exam with the VA in a week. I am currently rated at 70% ( they droped me from 80 to 70 because they said that even though I now have 2 more herniated discs in my neck and one more in my back my degenerative disc disease is getting better). I am hoping to finally get a 100% rating because due to my illness and the side effect of the meds I take I haver been unable to work since May of 03. I now suffer from near constant muscle/joint pain, fatigue, depression, headaches ( that can last as long as a month at a time), have trouble sleeping, morning stifness, and fogginess. I tried for Social Security ( on my own) with out knowing the system and was turned down. hey told me to go back to Real Estate. So much for the goverment you protected supporting you. I was too embarassed to appeal. I guess I should try again.

How does all this tie into the Gulf War? I was over there aboard ship but I never figured I was effected by GWS. I was over there long after the peak of hostilities were over ( first half of 93). Of course we got an array of shots and pills prior to deployment but I don't know where my shot record is and there is nothing in my medical record. As a Fire Controlman I worked on the Navy's Close In Weapons Sysytem (CIWS) which fired 20mm DU rounds. We fired the rounds all the time and of course had to clean the gun and police up the deck for the sabots and debris as well as daily exposure to the magazine. This of course meant exposure to solvents when cleaning the gun and its systems. Shipboard life naturally meant some exposure to pesticides because the corpsman would have to routinely spray for pests. How much if any of this can or has attributed to where I am todqay I don't know but is it worth going to the VA and having them poke and probe me even more then they have? Is it worth them trying to discredit what I have already fought so hard for? It seems to me the people who would have the most exposure were the ground troops envolved in the actual ground war. Belive I could be wrong as I am as far from being a knowledge source as one can be. It just seems that the VA should be there to support the Veterans not to make their lives a nightmare. The worst part is is that it seems like no one cares. We are yesterdays garbage set out to the curb for collection and disposal. brokendown&old Jan, 2005
Source




Quote:
As a Fire Controlman I worked on the Navy's Close In Weapons Sysytem (CIWS) which fired 20mm DU rounds. We fired the rounds all the time and of course had to clean the gun and police up the deck for the sabots and debris as well as daily exposure to the magazine. This of course meant exposure to solvents when cleaning the gun and its systems. Shipboard life naturally meant some exposure to pesticides because the corpsman would have to routinely spray for pests.


My dad was also FCC in the Navy in WWII.

He, I believe, had this chemical exposure I'm concerned about. I think it is in bomb fumes that get in your eyes; also it is what guns are cleaned with, most likely. Based on his death at about age 62 (too young too die) and the changes in his personality/health ... and some minor birth defects me and my brother have ... I do believe that the syndrome X and diabetes that I showed up for me in recent years ...is a late to show up birth defect. Some thoughts on this here:


Why the epidemic of DIABETES in WWII nations?
__________________
Look into BUTYL for CFIDS, CFS, FM & 'Military Syndromes' *

An e-mail request to the CDC

on Flu Symptoms

Traces of blood in urine? *

Diarrhea then Constipation?

Seizures Fainting Dizziness *



Last edited by Margaret Diann; 02-02-2008 at 04:46 AM.
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  #4  
Old 02-02-2008, 04:41 AM
Margaret Diann Margaret Diann is offline
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Join Date: Jan 2004
Location: Valdez, ALASKA 99686
Posts: 505
Default Boats, How is your wife now?

She may be dealing with autoimmune issues almost entirely

Does she have fatigue?
Short term memory loss?

What about glyconutrients for help?
http://www.valdezlink.com/re/jan08.htm

Will Glyconutrients Help?
Nutrition supports the engineering and design of life coded in genes. Thus, improved nutrition is not the treatment or cure of a disease.
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